The Foundation for Prader-Willi Research was founded by parents of children with Prader-Willi syndrome (PWS). As parents, we know exactly what you are experiencing – we’ve been there too. If there is one piece of advice that most of us would give to families with a new diagnosis of PWS, it is not to believe everything you read about PWS. All too often, the picture painted of PWS is so bleak that it threatens to overwhelm most families to the point of despair. If that is where you are, we are glad that you have found us and we want to let you know that no matter what you have read or heard, there is hope!
- PWS Message of Hope (Video), Aug 2018