The organizations in this area of the website address the information and support needs of families. Many of them are developed and managed by parents of children with disabilities. National, state and local websites with information for families are also found here.
49 Phrases to Calm an Anxious Child
It happens to every child in one form or another – anxiety. As parents, we would like to shield our children from life’s anxious moments, but navigating anxiety is an essential life skill that will serve them in the years to come. In the heat of the moment, try these simple phrases to help your children identify, accept, and work through their anxious moments.Beach Center on Disability
The Beach Center on Disability consists of a rehabilitation research and training center on policies and families, funded by the National Institute on Disability and Rehabilitation Research, U. S. Department of Education; doctoral training programs and research initiatives funded by the Office of Special Education, U.S. Department of Education; and a research center on the ethical, legal, and social implications of the Human Genome Project, funded by the National Human Genome Project Institute, National Institutes of Health.California Childcare Health Program
The mission of the California Childcare Health Program is to improve the quality of child care by initiating and strengthening linkages between the health, safety and child care communities and the families they serve. Established in 1987, the California Childcare Health Program is a community-based program of the University of California, San Francisco (UCSF) School of Nursing, Department of Family Health Care Nursing. Our multidisciplinary team staffs our toll-free Child Care Healthline, trains professionals on health and safety issues related to early care and education settings, and conducts research. We produce a wealth of materials on health and safety in early care and education settings for professionals and families.Center for Parent Information and Resources (CPIR)
Center on Technology and Disability (CTD)
The Center for Parent Information and Resources (CPIR), produced under the US Department of Education Office of Special Education, serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities. The site provides resources by topic area, some in English and Spanish and when available, by state.
Additional Resources from CPIR
- Trauma Informed Resource Collection Dec 2018
- Tools That Empower Spanish Speaking Families
- Index to Resources in Spanish for English speakers and link to the index that is entirely in Spanish
- A Resource Collection on Positive Behavior Supports, Functional Behavioral Assessment, and School Discipline Nov 2017
Welcome to this collection of resources on positive behavior supports and discipline of children with disabilities. The collection has been developed by a team of Parent Centers, specifically for the Parent Center network to use in their work supporting and empowering parents and families of children with disabilities.
- Rare Disorders: Disability Fact Sheet Published: June 2017
Roughly 7,000 rare diseases/disorders have been identified as affecting the human race. Because they are rare, it can be a real challenge for a person to be accurately diagnosed. Finding effective treatments, especially medicine, can also be a challenge—and for the same reason. Rareness.
If you have a rare disease, know someone who does, or work with people who might, here’s a core of resources we hope are helpful.
- Parent Technical Assistance Centers
Parent centers work to improve educational outcomes for children and youth with all disabilities (emotional, learning, mental, and physical). There are ten parent centers in California.
- Fact Sheet on the Rights of Immigrant Children
- NICHCY's New Home Sept 2014
September 30, 2014 was NICHCY's last day after more than 20 years of service. Happily, most of NICHCY's resources will stay in their new home at the Center for Parent Information and Resources.
- Developing culturally Responsive Approaches to Serving Diverse Populations: A Resource Guide for Community-Based Organizations Mar 2017
This 30-page resource guide, produced by the National Research Center on Hispanic Children and Families, identifies easily accessible resources on cultural competency that CBOs can use to become more responsive to the needs of their targeted populations, and to help attract funds to support their important work.
Child Care Aware
The Center on Technology and Disability (CTD) is funded by the U.S. Department of Education’s Office of Special Education Programs (OSEP). The Center is designed to increase the capacity of families and providers to advocate for, acquire, and implement effective assistive and instructional technology (AT/IT) practices, devices, and services. Research-based technologies, used appropriately, have great potential to help infants, toddlers, children, and youth with disabilities participate fully in daily routines; have increased access to the general educational curriculum; improve their functional outcomes and educational results; and meet college- and career-ready standards.
- CTD Library
- Isabel Needs Assistive Technology (Video)
In this story, you'll meet Marta, the mother of Isabel, a young girl with fine motor and learning disabilities. The video introduces viewers to assistive technology (AT) and takes them through an Individualized Education Program (IEP) meeting during which AT is considered. This video is captioned in English and is "described" as well. FCTD and Dicapta invite you to view and share this video with your colleagues and the families you serve. This video was originally produced as a Spanish-language resource. Voice-over and captioning were added to provide access to larger audience.
Coffee Klatch Special Needs Radio
Child Care Aware is a nonprofit initiative committed to helping parents find the best information on locating quality child care and child care resources in their community. It does this by raising visibility for local child care resource and referral agencies nationwide, and by connecting parents with the local agencies best equipped to serve their needs. The site has links to Child Care Resource and Referral organizations (CCR&Rs), local experts on child care that provide parents with many services, including referrals to local child care providers.
- "In the States" Interactive Map 2012
"In the States" Interactive Map includes information about child care licensing in each state, a link to the state page from Child Care Aware of America's reports reviewing child care center and family child care home policies in every state, and a link to Child Care Aware of America's one-page fact sheet with child care information related to the demographics in the state, the price of child care, and other data related to child care.
Award winning, world renowned authors, psychiatrists, psychologists, physicians, advocates and respected children's foundations join us to help you better understand a special needs child.... and yourself. You are your child's best advocate - if not you then who - become an informed educated parent here at The Coffee Klatch.Early Childhood Technical Assistance (ECTA)
ECTA is comprised of several recent OSEP-funded TA centers (NECTAC, CELL and TACSEI and ECO within the next two years). The purpose of ECTA is to improve state early intervention and early childhood special education service systems, increase the implementation of effective practices, and enhance the outcomes of these programs for young children and their families.
Additional Resources from Early Childhood Technical Assistance Center
- State Early Childhood Inclusion Self-Assessment (PDF) July 2017
- Pennsylvania Preschool Inclusion Self-Evaluation Tool
- ECTA Center for Families to help families understand their right under the Individuals with Disabilities Education Act (IDEA), connect with other families and find high quality resources related to caring for infants, toddlers and young children with disabilities.
- Recursos en Español (Resources in Spanish)
- Inclusion in Least Restrictive Environments
Designed for the administrators of state agencies responsible for services to young children and their families, including child care, Head Start, education, and early intervention. It has compiled information for administrators who are challenged with developing policies and programs that lead to inclusive comprehensive and coordinated services for all young children, ages birth to 8 years, and their families.
- Preschool Inclusion Finance Toolkit 2017 (PDF)
An update of ECTA Center's resource that addresses updated guidance in the Dear Colleague Letter on Preschool Least Restrictive Environments published earlier this year. Worksheets included in this toolkit:
- Early Intervention Program for Infants and Toddlers with Disabilities (Part C of IDEA)
Provides a listing by state of the websites of the organizations responsible for early intervention for babies with developmental disabilities
- Developing High Quality Functional IFSP and IEP Goals –Training Package
This training package has been developed collaboratively with staff from the ECTA Center and WRRC in response to the need expressed from state and local providers to have specific information and resources about developing Individualized Family Service Plan (IFSP) outcomes and Individualized Education Plan (IEP) goals. First introduced in September 2012, this revised training package includes: an introductory video; a set of six fully scripted PowerPoint presentations; handouts, activities and supplemental materials; and how states have used and adapted the materials.
- Inclusion in Least Restrictive Environments
- Position Statements on Inclusion from National Organizations
- Research and Studies on Inclusion
- Personnel Development for Inclusion
- Recommended Practices
The OSEP funded Early Childhood Technical Assistance Center (ECTA) has launched a campaign to bring widespread awareness about the DEC Recommended Practices (RPs). The latest ECTA resources to support implementation of the RPs include Performance Checklists for practitioners as well as Practice Guides for Practitioners and Practice Guides for Families. These resources were highlighted on a recent national webinar which was recorded and can be accessed in aRPy's Corner of the ECTA web site.
- ECTA Webinar Series: Upcoming and Archived:
eParent.comFamilies and Advocates Partnership for Education (FAPE)
is an online multi-media company dedicated to be the ultimate resource for everything related to the special needs community. Providing practical advice, emotional support, current trending news and educational information to empower caregivers and families of children and adults with disabilities and special healthcare needs. As well as to the physicians, allied health care professionals, and educational professionals who are involved in their care and development.
The Families and Advocates Partnership for Education (FAPE) project is a partnership that aims to improve the education outcomes for children with disabilities. It links families, advocates and self-advocates to information about the Individuals with Disabilities Education Act (IDEA). The project is designed to address the information needs of the 6 million families throughout the country whose children with disabilities receive special education services.Family Resource Center Network of California (FRCNCA)
The FRCNCA is a coalition of California's 47 Early Start Family Resource Centers. Staffed by families of children with special needs, family resource centers offer parent-to-parent support and help parents, families, and children locate and use needed services. They offer support services and resources in many languages, which may include newsletters, resource libraries, websites, parent-to-parent groups, sibling support groups, warmlines, and information and referral for parents and professionals.Free Things and Grants for Kids with Special Needs
We always want to provide the best for our kids, but somehow, the pressure is even greater when our kids have special needs. Of course, there are direct costs, such as the need for medical equipment to make their lives easier, but we also want to provide them with happy memories to at least partly make up for the tough times they experience at a very young age. Fortunately, there’s no need to feel all alone. There are some marvelous organizations out there that really want to help. Why not give them an opportunity to do so? Are you managing just fine on your own? Consider donating to these worthy causes instead.Friendship Circle
Greater Good Parenting: Raising Caring, Courageous Kids
Friendship Circle of Michigan is a non-profit organization that provides programs and support to the families of individuals with special needs. With over 75,000 visitors a month, the Friendship Circle Special Needs Resource blog is one of the biggest special needs blogs in the world. Currently the blog has over 500 articles on special needs topics including: parenting, special education, products, therapy tips, videos and more.
Kids in the House
Parents want to raise kind, caring, courageous children but few feel like they know precisely how to do that. In order to help bridge the gap between research and the daily lives of parents, the Greater Good Science Center, supported by the John Templeton Foundation, launched an initiative with three components to help parents raise kids of high character who treat others with compassion and respect.
The GGSC has developed a range of new resources sharing with parents the top research and best practices on raising children who are supportive of others and committed to something bigger than themselves. This includes publishing dozens of new articles for parents on Greater Good, creating several practical exercises for parents to try with their kids on Greater Good in Action, and producing a series of short videos designed for mobile devices and social media to reach busy parents on-the-go.
Kids Included Together (KIT)
The Ultimate Parenting Resource offers over 8000 videos on a comprehensive range of topics for a variety of age ranges for every type of family. Well respected experts present positive, useful information in short videos. For example take a look at the videos from:
- Dr. Dan Siegel , award winning author and lecturer. Dr. Siegel's unique ability to make complicated scientific concepts easy to understand and exciting has led him to be invited to address diverse local, national and international groups of mental health professionals, neuroscientists, corporate leaders, educators, parents, public administrators, healthcare providers, policy-makers, and clergy. Or explore the various topics under:
- Special Needs
- Top Tips for How to Raise a Happy Child
Love in A Different Language: Open Letter to Paraprofessionals
KIT stands for Kids Included Together, a registered 501(c)(3) non-profit organization that was founded in San Diego, California in 1997. The mission of Kids Included Together is to support recreational, child development, and youth development programs that include children with and without disabilities. KIT's goals are to enrich the lives of all who participate and to increase understanding and acceptance of disabilities as a natural part of life. We invite you to explore our site and learn more about our work in San Diego County and across the nation.
- Summer Camp Means Fun for All: How to Create a More Inclusive Camp May 20, 2022
Kids Included Together (KIT) says, “Pinpointing exactly what it means and looks like to be inclusive can be tough because creating a sense of belonging for each child will differ from person to person and camp to camp. But, that’s really what it is – creating a sense of belonging for each camper.”
“So, where do you start and how do you know if you’ve gotten there? Well, providing a meaningful experience for every camper may look varied, but it will be rooted in a few universal principles.” This article provides helpful considerations to add to KIT’s inclusion checklist.
- Additional Resources from KIT
- KIT: Top 5 Trends in Disability Inclusion 2018 Sept 2018
Kids Included Together (KIT) is leading the field in disability inclusion and behavior support through work with over 450 organizations in the United States, Europe, Asia, and Australia. Using research, media, and recent KIT data from 625 training sessions, 100 online courses, 325 onsite visits, and 1,752 support center calls, we have identified the top 5 trends in childhood disability inclusion. In 2018, we can exploit these trends to help increase meaningful inclusion of children with disabilities in schools and communities.
- Inclusion Resources: Videos, Tip Sheets, Checklists, Guidebooks and Websites Sept 2018
- Who We Are-Our Work: Publications Sept 2018
- What is Inclusion? (PDF) Sept 2018
To the Teacher's Aide in my Son's Special Education Classroom: I see what you are doing. This letter acknowledges the very important role of paraprofessionals in supporting children with special needs in the classroom.National Association for the Education of Young Children (NAEYC) For Families
National Center for Families Learning (NCFL)
This section of the National Association for the Education of Young Children website provides practical information, advice, including how to find quality child care, and resources directed toward parents.
National Father’s Network
NCFL provides support and strategies to a network of entities involved in advancing education and families learning together, including educators, schools, community based organizations, and libraries. Our efforts support learners of all ages in these environments in concert with our advocates and partners.
The National Father's Network provides resources and support for fathers of children with disabilities. It has wonderful articles by fathers, many of them in Spanish. The organization also produces written and video resources for fathers. The website is an excellent source of links for fathers, disabilities, and families.National Organization for Rare Disorders (NORD) Rare Disease Information
Access the rare disease information you need, download rare disease reports and find patient organizations on this site devoted to rare diseases.Native American Parent Technical Assistance Center (NAPTAC)
NAPTAC is a project within EPICS to provide training and technical assistance to Parent Training Information Centers (PTI's) and Community Parent Resource Centers (CPRC's) nationwide on providing effective, culturally responsive services to Native American families of children with disabilities, as well as youth with disabilities.PACER Center
Parent Center Hub: Babies & Toddlers
The Technical Assistance ALLIANCE for Parent Centers is an innovative project that provides technical assistance to the over 100 Parent Centers funded under the Individuals with Disabilities Education Act (IDEA). The ALLIANCE National Center at PACER Center conducts national conferences, produces materials on special education topics, and offers high quality expertise to Parent Centers nationwide.
- Translated Content
PACER offers bilingual workshops, individual assistance and translated publications focusing on issues facing families from diverse backgrounds. When you call PACER you may ask to speak with a multicultural staff person. You will be able to discuss your concerns and explore choices with an understanding parent advocate who also has a child with special needs.
Parent Companion: First Five Years
A legacy resource from NICHCY
Parents Helping Parents (PHP)
- The Four Stages of Adaptation: Stage 1 Surviving
The Four Stages of Adaptation model was developed by Dr. Nancy Miller, a psychotherapist and social worker. She worked with four moms over a period of five years and distilled their experiences into the book Nobody's Perfect: Living and Growing with Children Who Have Special Needs. The model came from conversations with the moms, experiences working with families, and the writings of many parents and professionals.
Parents Helping Parents is a parent organization that has a wealth of information and resources on disabilities. The website includes a library of books and videos that can be borrowed.PBS Parents: Inclusive Communities
Raising Children Network, the Austrailian Parenting Website
Learn about improving the overall quality of life for children with or without disabilities by promoting inclusion and respect for differences. Resource on this site help parents and caregivers create more inclusive communities.
On the Raising Children website, parents will find reliable and scientifically validated information and resources to support them in the day-to-day work of raising children and looking after their own needs. The website is growing all the time and covers a broad range of up-to-date parenting topics.
All content on the website has passed through a rigorous quality assessment process developed by the Raising Children Network (RCN) team and the RCN Scientific Advisory Board. The Board is made up of some of Australia's pre-eminent experts in child health and development and oversees the website's content development.
The quality assessment process ensures that each piece of website content is approved by at least two independent experts for accuracy and validity. A professional web editing team also assesses each piece on its accessibility and communication values to ensure the information is easy to understand, remember and act on.
Schwab Learning is an operating program of the Charles and Helen Schwab Foundation, a private, nonprofit foundation that funds programs in learning disabilities and human services. Schwab Learning provides free information, resources, publications and support to parents of children who struggle with learning and to kids themselves through two websites and Outreach and Community Services. Schwab's Learning Outreach and Community Services further supports the needs of kids and families through educational workshops, seminars, presentations, exhibits, and special projects.Sesame Street in Communities
Sibling Support Project
This website provides information, videos and activities on a variety of topics to support families and care providers in teaching young children. Information may be geared to either care providers or families and activities can be selected by age group. Topics range from routines and exploring emotions to autism, divorce, incarceration and homelessness. Available in both English and Spanish.
Through the Looking Glass (TLG)
Founded in 1990, the Sibling Support Project is the first national program dedicated to the life-long and ever-changing concerns of millions of brothers and sisters of people with special health, developmental, and mental health concerns.
We’ve published books
for and about brothers and sisters, host online groups
for teen and adult siblings, and presented workshops
on sibling issues internationally and in every state.
However, we’re best known for helping local communities start Sibshops
—lively peer support groups for school-age brothers and sisters of kids with special needs.
Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. TLG provides home-based services in Alameda and Contra Costa Counties.Understood
United Cerebral Palsy: Transportation Safety
Parents want the best for their children. We do, too. For the first time ever, 15 nonprofit organizations have joined forces to support parents of the one in five children with learning and attention issues throughout their journey.
With the right support, parents can help children unlock their strengths and reach their full potential. With state-of-the-art technology, personalized resources, free daily access to experts, a secure online community, practical tips and more, Understood aims to be that support.
Children and adults with disabilities might require specialized car seats or vehicle modifications to ensure safe transportation. The resources on this page can help ensure safer travel.Wrightslaw
Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities. The website contains articles, cases, newsletters, and resources about dozens of topics in the Advocacy Libraries and Law Libraries.