It happens to every child in one form or another – anxiety. As parents, we would like to shield our children from life’s anxious moments, but navigating anxiety is an essential life skill that will serve them in the years to come. In the heat of the moment, try these simple phrases to help your children identify, accept, and work through their anxious moments.Resource Added: Sep 2016
Organizations Designed for Families of Children with Disabilities
The organizations in this area of the website address the information and support needs of families. Many of them are developed and managed by parents of children with disabilities. National, state and local websites with information for families are also found here.
Support Organizations for Specific Disabilities
If you are looking for an organizations that support families with a specific disability please visit the Disability-Specific area of the website.
For information about local support groups for families try visiting County Specific Resources and find the link to your local Early Start Family Resource Center or call them. They connect families to support organizations and local groups regularly.
The Beach Center on Disability consists of a rehabilitation research and training center on policies and families, funded by the National Institute on Disability and Rehabilitation Research, U. S. Department of Education; doctoral training programs and research initiatives funded by the Office of Special Education, U.S. Department of Education; and a research center on the ethical, legal, and social implications of the Human Genome Project, funded by the National Human Genome Project Institute, National Institutes of Health.Resource Added: Mar 2015
The mission of the California Childcare Health Program is to improve the quality of child care by initiating and strengthening linkages between the health, safety and child care communities and the families they serve. Established in 1987, the California Childcare Health Program is a community-based program of the University of California, San Francisco (UCSF) School of Nursing, Department of Family Health Care Nursing. Our multidisciplinary team staffs our toll-free Child Care Healthline, trains professionals on health and safety issues related to early care and education settings, and conducts research. We produce a wealth of materials on health and safety in early care and education settings for professionals and families.Resource Added: Mar 2015
The Center for Parent Information and Resources (CPIR), produced under the US Department of Education Office of Special Education, serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities. The site provides resources by topic area, some in English and Spanish and when available, by state.
- Select link to show Center for Parent Information and Resources
- Rare Disorders: Disability Fact Sheet Published: June 2017
Roughly 7,000 rare diseases/disorders have been identified as affecting the human race. Because they are rare, it can be a real challenge for a person to be accurately diagnosed. Finding effective treatments, especially medicine, can also be a challenge—and for the same reason. Rareness.
If you have a rare disease, know someone who does, or work with people who might, here’s a core of resources we hope are helpful.
- Tools That Empower Spanish Speaking Families
- Parent Technical Assistance Centers
Parent centers work to improve educational outcomes for children and youth with all disabilities (emotional, learning, mental, and physical). There are ten parent centers in California.
- Fact Sheet on the Rights of Immigrant Children
- Find Your Parent Center
Families with a child who has a disability often need information about the disability of their child, about early intervention (for babies and toddlers), school services (for school-aged children), therapy, local policies, transportation, and much more. Every State has at least one Parent Training and Information Center (PTI) to offer families just this kind of information. Many States also have a Community Parent Resource Center (CPRC), which offers the same type of support and training to parents of children with disabilities. Click for a quick read on what PTIs and CPRCs do, and how they can help parents and families of children with disabilities (PDF)
- NICHCY’s New Home
September 30, 2014 was NICHCY’s last day after more than 20 years of service. Happily, most of NICHCY’s resources will stay in their new home at the Center for Parent Information and Resources
- NICHCY Resources
- For English Speakers… Index to Resources in Spanish
- Sitio en Español (Site in Spanish)
- Recursos en Español (Resources in Spanish)
- NICHCY Pinterest Boards
- Developing culturally Responsive Approaches to Serving Diverse Populations: A Resource Guide for Community-Based Organizations -March 2017
This 30-page resource guide, produced by the National Research Center on Hispanic Children and Families, identifies easily accessible resources on cultural competency that CBOs can use to become more responsive to the needs of their targeted populations, and to help attract funds to support their important work.
The Center on Technology and Disability (CTD) is funded by the U.S. Department of Education’s Office of Special Education Programs (OSEP). The Center is designed to increase the capacity of families and providers to advocate for, acquire, and implement effective assistive and instructional technology (AT/IT) practices, devices, and services. Research-based technologies, used appropriately, have great potential to help infants, toddlers, children, and youth with disabilities participate fully in daily routines; have increased access to the general educational curriculum; improve their functional outcomes and educational results; and meet college- and career-ready standards.
- CTD Library
- Isabel Needs Assistive Technology (Video)
In this story, you’ll meet Marta, the mother of Isabel, a young girl with fine motor and learning disabilities. The video introduces viewers to assistive technology (AT) and takes them through an Individualized Education Program (IEP) meeting during which AT is considered. This video is captioned in English and is “described” as well. FCTD and Dicapta invite you to view and share this video with your colleagues and the families you serve. This video was originally produced as a Spanish-language resource. Voice-over and captioning were added to provide access to larger audience.
Child Care Aware is a nonprofit initiative committed to helping parents find the best information on locating quality child care and child care resources in their community. It does this by raising visibility for local child care resource and referral agencies nationwide, and by connecting parents with the local agencies best equipped to serve their needs. The site has links to Child Care Resource and Referral organizations (CCR&Rs), local experts on child care that provide parents with many services, including referrals to local child care providers.
- “In the States” Interactive Map 2012
“In the States” Interactive Map includes information about child care licensing in each state, a link to the state page from Child Care Aware of America’s reports reviewing child care center and family child care home policies in every state, and a link to Child Care Aware of America’s one-page fact sheet with child care information related to the demographics in the state, the price of child care, and other data related to child care.
Award winning, world renowned authors, psychiatrists, psychologists, physicians, advocates and respected children’s foundations join us to help you better understand a special needs child…. and yourself. You are your child’s best advocate – if not you then who – become an informed educated parent here at The Coffee Klatch.Resource Added: Mar 2015
ECTA is comprised of several recent OSEP-funded TA centers (NECTAC, CELL and TACSEI and ECO within the next two years). The purpose of ECTA is to improve state early intervention and early childhood special education service systems, increase the implementation of effective practices, and enhance the outcomes of these programs for young children and their families.
- Select link to show Early Childhood Technical Assistance Center Resources
- ECTA Center for Families to help families understand their right under the Individuals with Disabilities Education Act (IDEA), connect with other families and find high quality resources related to caring for infants, toddlers and young children with disabilities.
- Recursos en Español (Resources in Spanish)
- Inclusion in Least Restrictive Environments
Designed for the administrators of state agencies responsible for services to young children and their families, including child care, Head Start, education, and early intervention. It has compiled information for administrators who are challenged with developing policies and programs that lead to inclusive comprehensive and coordinated services for all young children, ages birth to 8 years, and their families.
- Early Intervention Program for Infants and Toddlers with Disabilities (Part C of IDEA)
Provides a listing by state of the websites of the organizations responsible for early intervention for babies with developmental disabilities
- Developing High Quality Functional IFSP and IEP Goals –Training Package
This training package has been developed collaboratively with staff from the ECTA Center and WRRC in response to the need expressed from state and local providers to have specific information and resources about developing Individualized Family Service Plan (IFSP) outcomes and Individualized Education Plan (IEP) goals. First introduced in September 2012, this revised training package includes: an introductory video; a set of six fully scripted PowerPoint presentations; handouts, activities and supplemental materials; and how states have used and adapted the materials.
- Inclusion in Least Restrictive Environments
- Position Statements on Inclusion from National Organizations
- Research and Studies on Inclusion
- Personnel Development for Inclusion
- Recommended Practices
The OSEP funded Early Childhood Technical Assistance Center (ECTA) has launched a campaign to bring widespread awareness about the DEC Recommended Practices (RPs). The latest ECTA resources to support implementation of the RPs include Performance Checklists for practitioners as well as Practice Guides for Practitioners and Practice Guides for Families. These resources were highlighted on a recent national webinar which was recorded and can be accessed in aRPy’s Corner of the ECTA web site.
- ECTA Webinar Series: Upcoming and Archived:
- National Inclusion Webinar February 2016: Preschool Inclusion: What’s the Evidence, What Gets in the Way, and What do High-Quality Programs Look Like?
- Early Childhood Training Modules from the IRIS Center March – April 2016
- Session 1: Dual Language Learners with Disabilities: Supporting Young Children in the Classroom
- Session 2: Early Childhood Environments: Designing Effective Classrooms Module & Website Tour
The Families and Advocates Partnership for Education (FAPE) project is a partnership that aims to improve the education outcomes for children with disabilities. It links families, advocates and self-advocates to information about the Individuals with Disabilities Education Act (IDEA). The project is designed to address the information needs of the 6 million families throughout the country whose children with disabilities receive special education services.Resource Added: Mar 2015
The FRCNCA is a coalition of California’s 47 Early Start Family Resource Centers. Staffed by families of children with special needs, family resource centers offer parent-to-parent support and help parents, families, and children locate and use needed services. They offer support services and resources in many languages, which may include newsletters, resource libraries, websites, parent-to-parent groups, sibling support groups, warmlines, and information and referral for parents and professionals.
Friendship Circle of Michigan is a non-profit organization that provides programs and support to the families of individuals with special needs. With over 75,000 visitors a month, the Friendship Circle Special Needs Resource blog is one of the biggest special needs blogs in the world. Currently the blog has over 500 articles on special needs topics including: parenting, special education, products, therapy tips, videos and more.
- Select link to show Friendship Circle Resources
- Friendship Circle Blog
- 10 Things You Should Know About Feeding Therapy
Whether working with children with special needs such as Autism Spectrum Disorders (ASD), Down syndrome or Sensory Processing Disorder (SPD) or with a child coined the “picky eater” of the family, the ultimate goal of feeding therapy is to establish regular, nutritious family meals that are joyful for the entire family. Here you’ll find the top 10 things you should know before starting your family begins feeding therapy.
- 23 Ways to Communicate with a Nonverbal Child
People with little or no speech still have the same communication needs as the rest of us. We may just have to work a bit harder to find a communication strategy that works.
- 33 Autism Resources You Need to Read
- 26 Sensory Integration Tools for Meltdown Management
- The Latest Number in Autism is 1 in 45: What Does It Mean?
- The Special Needs Calendar of 2016: A Year of Awareness (Downloadable calendar) (PDF)
- 5 Reasons Speech and Language Therapy is Crucial for a Nonverbal Child
- 4 Tips to Facilitate Friendships in the Inclusive Classroom
- 5 Excellent Storytelling Apps for Kids with Special Needs
The Ultimate Parenting Resource offers over 8000 videos on a comprehensive range of topics for a variety of age ranges for every type of family. Well respected experts present positive, useful information in short videos. For example take a look at the videos from:
- Dr. Dan Siegel , award winning author and lecturer. Dr. Siegel’s unique ability to make complicated scientific concepts easy to understand and exciting has led him to be invited to address diverse local, national and international groups of mental health professionals, neuroscientists, corporate leaders, educators, parents, public administrators, healthcare providers, policy-makers, and clergy. Or explore the various topics under:
- Special Needs
- Top Tips for How to Raise a Happy Child
KIT stands for Kids Included Together, a registered 501(c)(3) non-profit organization that was founded in San Diego, California in 1997. The mission of Kids Included Together is to support recreational, child development, and youth development programs that include children with and without disabilities. KIT’s goals are to enrich the lives of all who participate and to increase understanding and acceptance of disabilities as a natural part of life. We invite you to explore our site and learn more about our work in San Diego County and across the nation.
- KIT National Training Center on Inclusion (NTCI)
NTCI was established to support the overall mission of Kids Included Together through training, technical assistance and resources of the highest quality for staff in out of school time programs at all levels of experience and interest. KIT’s National Training Center on Inclusion utilizes a combination of the latest technology coupled with live presentations by dynamic and experienced trainers and practitioners to support providers like you in welcoming children with disabilities.
- National Training Center on Inclusion Free Community Trainings
To the Teacher’s Aide in my Son’s Special Education Classroom: I see what you are doing. This letter acknowledges the very important role of paraprofessionals in supporting children with special needs in the classroom.Resource Added: Sep 2016
This section of the National Association for the Education of Young Children website provides practical information, advice, including how to find quality child care, and resources directed toward parents.
NCFL provides support and strategies to a network of entities involved in advancing education and families learning together, including educators, schools, community based organizations, and libraries. Our efforts support learners of all ages in these environments in concert with our advocates and partners.
- What Works: Early Literacy Initiative-Free materials and videos to support early literacy in English and Spanish
- Bilingual Resources: Free videos and materials in English and Spanish
NCFL presents an exciting way for Spanish-speaking parents to get more involved in their child’s education at school with a set of bilingual resources, including Foto-Novelas.
- En Camino
A comprehensive toolkit of educational resources that support Spanish-speaking families’ aspirations for education.
The National Father’s Network provides resources and support for fathers of children with disabilities. It has wonderful articles by fathers, many of them in Spanish. The organization also produces written and video resources for fathers. The website is an excellent source of links for fathers, disabilities, and families.Resource Added: Apr 2015
Access the rare disease information you need, download rare disease reports and find patient organizations on this site devoted to rare diseases.Resource Added: Apr 2015
NAPTAC is a project within EPICS to provide training and technical assistance to Parent Training Information Centers (PTI’s) and Community Parent Resource Centers (CPRC’s) nationwide on providing effective, culturally responsive services to Native American families of children with disabilities, as well as youth with disabilities.Resource Added: Sep 2016
The Technical Assistance ALLIANCE for Parent Centers is an innovative project that provides technical assistance to the over 100 Parent Centers funded under the Individuals with Disabilities Education Act (IDEA). The ALLIANCE National Center at PACER Center conducts national conferences, produces materials on special education topics, and offers high quality expertise to Parent Centers nationwide.
- Translated Content
PACER offers bilingual workshops, individual assistance and translated publications focusing on issues facing families from diverse backgrounds. When you call PACER you may ask to speak with a multicultural staff person. You will be able to discuss your concerns and explore choices with an understanding parent advocate who also has a child with special needs.
- The Four Stages of Adaptation: Stage 1 Surviving
The Four Stages of Adaptation model was developed by Dr. Nancy Miller, a psychotherapist and social worker. She worked with four moms over a period of five years and distilled their experiences into the book Nobody’s Perfect: Living and Growing with Children Who Have Special Needs. The model came from conversations with the moms, experiences working with families, and the writings of many parents and professionals.
Parents Helping Parents is a parent organization that has a wealth of information and resources on disabilities. The website includes a library of books and videos that can be borrowed.Resource Added: Apr 2015
Learn about improving the overall quality of life for children with or without disabilities by promoting inclusion and respect for differences. Resource on this site help parents and caregivers create more inclusive communities.
On the Raising Children website, parents will find reliable and scientifically validated information and resources to support them in the day-to-day work of raising children and looking after their own needs. The website is growing all the time and covers a broad range of up-to-date parenting topics.
All content on the website has passed through a rigorous quality assessment process developed by the Raising Children Network (RCN) team and the RCN Scientific Advisory Board. The Board is made up of some of Australia’s pre-eminent experts in child health and development, and oversees the website’s content development.
The quality assessment process ensures that each piece of website content is approved by at least two independent experts for accuracy and validity. A professional web editing team also assesses each piece on its accessibility and communication values to ensure the information is easy to understand, remember and act on.
- Baby Karaoke App free!
Our popular Baby Karaoke is available as a free smartphone app! With the mobile version of Baby Karaoke, you can sing with your child in the car, on holidays, waiting at the dentist, or under the blanket on a rainy day.
Schwab Learning is an operating program of the Charles and Helen Schwab Foundation, a private, nonprofit foundation that funds programs in learning disabilities and human services. Schwab Learning provides free information, resources, publications and support to parents of children who struggle with learning and to kids themselves through two websites and Outreach and Community Services. Schwab’s Learning Outreach and Community Services further supports the needs of kids and families through educational workshops, seminars, presentations, exhibits, and special projects.Resource Added: Apr 2015
Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. TLG provides home-based services in Alameda and Contra Costa Counties.Resource Added: Apr 2015
Children and adults with disabilities might require specialized car seats or vehicle modifications to ensure safe transportation. The resources on this page can help ensure safer travel.Resource Added: Apr 2015
Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities. The website contains articles, cases, newsletters, and resources about dozens of topics in the Advocacy Libraries and Law Libraries.
- Free publications
From this page, download free publications about IEPs, special education, transition planning, reading, children’s mental health, harassment, high-stakes testing, retention and social promotion, zero tolerance and discipline. The contents of this page change often as we add new publications.
- Back to School Survival Guide (for Parents of Kids with Special Needs)
- Rare Disorders: Disability Fact Sheet Published: June 2017